PDA

View Full Version : Kids cardiology appt. today

SerenaWelsh
05-04-2005, 08:53 AM
Hi all.

All of my kids are going to the cardiologist today. Please keep us in your thoughts and prayers.

At their last visit, Madi's DCM was almost non-existant, with an EF of 55% and heart back to normal size - while Jack was still in the free and clear.
Cate was last checked in the NICU and was fine.

I'm happy with more of the same.
mikeyandBellesmommy
05-04-2005, 09:17 AM
GOOD luck guys! I am sure all will be great!!!

Cari
melissamph
05-04-2005, 10:48 AM
Serena,

I am praying for more of the same wonderful news!
Yvonne
05-04-2005, 11:47 AM
Serena,

You are in my thoughts! I wish you at least more of the same.
Have a good appointment!

Yvonne
momoftwoboys
05-04-2005, 12:41 PM
Good luck being sent your way for the little kiddos today. Hope all goes well. I have faith that everything is going to be alright with them. Let us know how it went.
Lisa V
05-04-2005, 01:24 PM
Good luck to the whole family................................
SerenaWelsh
05-04-2005, 04:32 PM
Conflicting new on Madison.
Her shortening fraction is 43%, her EF is about 40%. He says it is not, nor has ever been 55%, even though it came directly from his mouth at her last visit. Either way, he says it's no change from last visit, which he's very happy about.

Cate is good. Perfectly normal.

Jack has an enlarged left ventrical. This was not present at his last check-up. There is no dysfunction at this time, so no meds. He will now be monitored every 6 months as well. He also has a murmur that was not previously there, along with some regurgitation, neither of which are worrisome at this point. Dr. believes that he is at the very earliest onset of DCM, and will more than likely be on meds by next year.

With this, they are FINALLY considering genetic testing.... stay tuned.
momofthree
05-04-2005, 06:58 PM
Oh Serena, this whole thing is new to me concerning your children. You bet you have the prayers. More at ya later. Hang in there!!! Alison
Yvonne
05-05-2005, 02:18 AM
Oh Serena,

What an unexpected and discouraging news.
It's good to know things early, but this was not the news you would like most to hear. I feel sorry for you all.

As you know, I live in the UK and I found there a great forum too about cardiomyopathy. There are also many people writing about FDCM and their children with DCM or LVE. Maybe there some questions can be answered. On the site is a whole part about genetic research.

www.cardiomyopathy.org

Yvonne
Natasha
05-06-2005, 08:56 PM
I was just about to post about the cardiomyopathy.org site, but I see that Yvonne beat me to it! ;) Go there, Serena. Recently we've had many moms on with kids with DCM. One mom has 4 boys, 3 of which have DCM. I think you would enjoy "chatting" with them.
jmonte
05-07-2005, 06:40 AM
I've checked out that site too- it's good. I'm sorry you didn't have better news but Hallelujah that they found all this so early and your kids will be so smart when it comes to their heart! Take care and please keep us posted- Julie
momoftwoboys
05-08-2005, 10:15 AM
Serena ~ Sorry to hear of all this. Seems to be never ending hey? You really sound like you are staying very strong through everything (or else you're just really good at sounding "together"). You are obviously very educated on all this heart stuff, so at least you have experience in this department to deal with your children and their heart issues. Just keep that chin up and take every day, one at a time. Remember we're here for ya. {{{BIG HUGS}}} for you and the kiddos.