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View Full Version : Hi everyone! Newbie on board!:)


Sheba
03-30-2005, 01:53 AM
Hi! My name is Dawn and I am 39 years old. I have 5 boys(19,16,8,5,and 2) and just gave birth in January to a beautiful baby girl. My pregnancies were uneventful and I never had a clue that I was about to become a PPCM survivor this year.
I gave birth on January 23rd to my daughter and exactly 2 weeks later, I was back in the hospital. About 4 days after getting home from the hospital, I started to retain water and had a hard time breathing. My OB said that it was most likely due to edema and that the fluid would eventually leave my body. I was told to rest a lot and it should go away..well, it didn't.:( I woke up on February 7th and had just finished breastfeeding my daughter. I stood up and has immediate chest pain and couldn't breathe. My lungs started to fill with fluid and I heard wheezing and crackling noises. I started to have the sweats and felt like I was going to pass out.The My husband called 911 and I was immediately taken to the hospital and treated for a heart attack. My EF was 20% when I was there and they diagnosed me with PPCM.I had a catherization performed because they thought I had some blockage but the test showed that my arteries were clear but that my heart was enlarged. They were very suprised about the diagnosis because I have always been in great health and never had any heart problems. I was in the hospital for 5 days and I missed my children terribly..especially my 2 week old daughter. I was told I couldn't breastfeed her anymore due to the meds and I cried. My husband started her on a bottle immediately and she has been doing great ever since.
I have been seeing a wonderful cardiologist and he perscribed Coreg,Plavix,Lasix,Aldectone, and Vasotec. I am feeling pretty good right now but do have my bad days as well. I had an echo performed on Monday and my EF has risen to 40-45%...yeah! :) My doctor said that some of the damage seems to be repairing itself but it will still take a long time to recover.He wanted me to start eating better and cutting back on salt and fats and eliminating caffiene. I have done that and in the process lost 40lbs..30lbs was baby and 10lbs was extra fluff I didn't need to have on me. :D
I wanted to find a support group and have been reading through some of the threads here and thought this would be a nice place to meet some survivors. I thank my lucky stars each and everyday that I am here. My children mean the world to me and I am glad I am able to see them grow up.
I hope to get to know everyone better. Take care and have a great day!

Dawn :)

Lisa V
03-30-2005, 08:03 AM
Welcome to this wonderful site Dawn..........................
WOW, 6 kids.............................God Bless you.........................
I am so happy that you have found us, you will find some amazing woman on these boards, along with some amazing stories of our PPCM days......It has been 5 years since I was diagnosed with an EF of 10%, I am suurently holding around 55%. Never thought I would see those numbers or even be here for my 5 year anniversary. The prognosis I was trold was 50% get better, 50% same the same, and 50% get worse and that within 5 years you will not be here. Well, I have beaten all those odds and I am still here. You sound as if you are doing great with your diet and with your heart healing. Please read my BIO to learn about my experience with PPCM. Can you please let me know where you live? For some reason I feel like you live close to me, it is just a feeling and I am probably way off. Hope to see you around alot and share in our discussions.

mikeyandBellesmommy
03-30-2005, 08:04 AM
Welcome!!! Boy do you have your hands full, LOL! Cognratulations on your new baby girl and your quick recovery time. You are doing awesome!

I am cari, Mommy to Isabella my first PPCM baby and Mikey my second, Isabella will be 4 in april and my baby boy will be 1 in May! I am still on vasotec and my last echo showed an ef of 60% 9 months post my second diagnosis!

I am glad you found US!!!

Cari :D

JAMESFETT
03-30-2005, 08:22 AM
Here's another prayer for your complete recovery, and it does sound like you are well on the way. Chest pain with PPCM always causes concern that a very tiny clot may have broken from the left ventricle and passed in the circulation to a coronary artery--that has been reported more than once--but your coronary arteries are just fine, unless it could have been a very very tiny clot (embolus) that went to the very smallest branch and could not be seen on catheterization. Those clots develop when the EF is less than 35 percent, and that is why anticoagulants are used early on, but again your EF has already jumped to 40 percent, so many reasons to be grateful. I hope and pray your healing continues to progress, and i'm grateful for that.

James

SerenaWelsh
03-30-2005, 08:32 AM
Congrats on the baby girl.
You know, after five boys, you'd be a queen in some countries! I'm glad you found us, and that your recovery is well under way.

dawn
03-30-2005, 09:08 AM
Hi Dawn! Glad you found us, and that you are healing. Congrats on your baby girl, I'm sure you have a lot of help with all those big brothers.

Looking forward to getting to know you. Sorry I already claimed your user name. ;)

dawn (also with a little girl, but no boys!)
dx'd 2001

dawn
03-30-2005, 09:09 AM
Hey, where are you in NY?

momoftwoboys
03-31-2005, 08:17 PM
Way to go, having a little girl after 5 boys! Whew, you must be relieved! I hate to see what her first boyfriend is going to have to go through. Anyway, I have two little boys (3 and 5) and I'm 26 years old. I was diagnosed after the second, a little over three years ago. My EF has slowly crept back up to normal (started out at 30-35%). Sounds like you are on the great road of recovery, like many women here. This will be a great place for you to come and "vent" and get support. Hope I see more of you around on the boards.