A Mother's Heart depends on its members and the kindness of strangers to help raise awareness about PPCM. We've provided a few ways that you can help as well.
 

 Peripartum Cardiomyopathy Support Network

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Send a Letter

Download this informational letter (provided by James D. Fett, MD) and mail it to your OBGYN or PCP. If you have a few extra stamps left over, please mail this to as many doctors in your local area as you see fit.


For a list of OBGYNs in your area, you can visit the American College of Obstetricians and Gynecologists and search by state, then city. Keep in mind that this is not a complete list of OBGYNs, as it only includes those whom have elected to be listed.
 

 

Buy the Book  Shop the Store

A Mother's Heart is not accepting monetary donations at this time.  However, your generosity can be directed towards the Paulette Pierre PPCM Research and Clinical Care Fund:


Hôpital Albert Schweitzer
Pittsburgh Office of Finance
P.O. Box 81046
Pittsburgh, PA 15217
Tel 412-361-5200
www.hashaiti.org

 Help Us Establish a PPCM Registry

At this time there is no database of Peripartum Cardiomyopathy patients in North America. A registry established to provide a population base to describe the epidemiologic features and clinical course of PPCM would promote the development of etiology specific treatments, and help us to understand regional, ethnic, and age differences in PPCM. It will also help to determine whether certain baseline factors at diagnosis, or trends over time, can predict outcomes for mortality, late abnormalities of ventricular structure and function, congestive heart failure and listing for heart transplantation or receiving a heart transplantation, as well as help to predict which patients may be at least or greatest risk of a reoccurrence or worsening of PPCM in subsequent pregnancies.

The National Heart, Lung and Blood Institute (NHLBI), under National Institutes of Health (NIH) has recently declined an opportunity to fund a registry database of Peripartum Cardiomyopathy patients. Unfortunately there are individuals within the NIH that feel PPCM is not a destinct entity but rather can always be attributed to hypertension or preeclampsia or iatrogenic fluid overload. This decision was made with outdated and incorrect information.

Please send a letter to your US Representative urging her/him to educate themselves on known facts about Peripartum Cardiomyopathy so that they can join us in persuading the decision makers at NIH to fund a PPCM registry.