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Peripartum
Cardiomyopathy is defined as cardiac failure in the last month of
pregnancy, or within five months post partum, when there is absence of
heart disease prior, and no other cause can be found, and there is
documented systolic dysfunctions. |
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Peripartum
Cardiomyopathy Support Network |
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Symptoms
Shortness of Breath. This can
be exaggerated upon exertion or when lying flat.
Fatigue. Some fatigue is normal with pregnancy and while caring
for a new baby, so it's important to know your body and what is out of
the norm.
Swelling. Ankles, feet, hands, and face are all places fluid
retention can cause swelling. In severe cases, abdominal swelling may
also be present.
Palpitations, or feeling like
your heart is racing, stopping, skipping beats, or fluttering.
Frequent night time urination.
Fainting. If this happens, please seek emergency medical
attention immediately.
Chest Pain. Always seek immediate care for chest pains. |
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At Risk
In Japan, Peripartum
Cardiomyopathy is estimated to affect 1 of every 6,000
pregnancies. One in every 1,000 pregnancies in South America
are affected, and as many as 1 in every 350 live births to
mothers in Haiti are affected by PPCM. In the United States,
it is estimated that PPCM occurs in 1 out of every 1300 -
15,000 live births. One thousand, three hundred or fifteen
thousand? That's a huge discrepancy. One glaring reason for
the alarming range is the lack of any wide spread formal
research in the US.
Peripartum Cardiomyopathy is more prevalent in women
carrying multiples (twins, triplets, etc...) and in women
with preeclampsia, but many women without either of those
two risk factors develop PPCM. It was once thought that
mothers older than 30 years old carried the greater risk of
developing PPCM, but recent studies have shown that just
isn't the case.
Based on case studies in the United States, PPCM is most
likely to develop in African American women living in the
south, but it can occur in any pregnant or post partum woman
of any age and/or geographic location.
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Diagnosis
Echocardiograms (ECG)
are ultrasound pictures taken of your heart. They're much like
ultrasounds a pregnant woman will receive of her baby. They are
not painful, but are sometimes uncomfortable. This test can show
heart enlargement, decreased cardiac output, movement of the
heart, and the electrical functioning of the heart. This is a
very important test for diagnosing and following Peripartum
Cardiomyopathy.
An Electrocardiogram
(EKG) may be done to quickly show electrical functioning of the
heart. Holter Monitors
may be prescribed for a period of several hours or days to
record the rhythm of the heart over longer periods of time.
Chest X rays,
Chest CT scans, and
MUGA or
RNV are
radiological tests
that may be used to show heart size and function, or congestion
in the lungs and the veins of the lungs.
A heart biopsy may be
helpful to determine the underlying cause of Peripartum
Cardiomyopathy, as many cases may be caused by
myocarditis.
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Treatment
Certain drug therapies
are considered standard care for Peripartum Cardiomyopathy
patients. Those include
Beta Blockers,
Ace-inhibitors,
and diuretics.
Digoxin may also
be prescribed.
Because patients are usually young, and otherwise healthy,
all means necessary are applied to ensure survival. Heart
dysfunction in PPCM patients can be reversible with the
proper, timely treatment. This typically only involves drug
therapies, but in severe cases may include extreme measures
such as an artificial heart or a heart transplant.
Immunosuppressive therapy is sometimes successful. However,
for most women, treatment primarily is for symptom relief.
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Prognosis
Over half of PPCM
patients improve quickly, regaining normal heart function within the
first few weeks and months after their diagnosis. Others continue to
improve over the next several months and years. Even those who do not
return to completely normal heart function can improve a great deal with
treatment, and live a long, comfortable life.
Newer, effective treatments have progressively improved both survival
(95% or more) and recovery, without the need for heart transplant. There
is always hope.
Upon making a full recovery, some women consider the possibility of
having additional children. This option isn't for everyone, but the
stern warning not to have more children is not one-size-fits-all. To
learn more about the risks should you try for a subsequent pregnancy,
please view this algorithm produced by James D. Fett, MD. |