Dear PPCM survivors,
Peripartum cardiomyopathy (PPCM) is a potentially devastating
disease affecting young, healthy women during what should be the
most special time in their life. It is estimated to occur in
approximately 1,000 to 1,300 women each year in the United States
and death rates have ranged between 18% and 56%. Those women that do
survive and even those that regain complete heart function are
instructed that future pregnancies may have catastrophic results.
Despite its potentially profound physical and psychological impact
on healthy young women there is still very little known about PPCM.
Much of the current understanding is based on older studies with
small sample size and written prior to the establishment of specific
criteria for the diagnosis.
Saint Vincentís Medical Center and the cardiovascular research
department have designed a study to enroll and survey women with
this disease. We hope to enroll as many women as possible in order
to accumulate valuable information that may change the way women
with PPCM are evaluated, treated and followed. By using progressive
techniques like web-based recruitment to find patients, we hope to
register more PPCM survivors than ever before.
If you would like to participate in this study, please download each
of the forms listed below, and return to us in one of the following
1) By Mail:
St. Vincent's Catholic
Dept. of Cardiovascular
Research, Spellman 9th flr.
170 West 12th St.
NY, NY 10011
2) By Fax:
3) By E-mail (you
must have a scanner for this)