New York
Peripartum Cardiomyopathy
Study Group
Now Enrolling!
Peripartum Cardiomyopathy Support Network
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Dear PPCM survivors,
Peripartum cardiomyopathy (PPCM) is a potentially devastating disease affecting young, healthy women during what should be the most special time in their life. It is estimated to occur in approximately 1,000 to 1,300 women each year in the United States and death rates have ranged between 18% and 56%. Those women that do survive and even those that regain complete heart function are instructed that future pregnancies may have catastrophic results. Despite its potentially profound physical and psychological impact on healthy young women there is still very little known about PPCM. Much of the current understanding is based on older studies with small sample size and written prior to the establishment of specific criteria for the diagnosis.
Saint Vincent’s Medical Center and the cardiovascular research department have designed a study to enroll and survey women with this disease. We hope to enroll as many women as possible in order to accumulate valuable information that may change the way women with PPCM are evaluated, treated and followed. By using progressive techniques like web-based recruitment to find patients, we hope to register more PPCM survivors than ever before.
If you would like to participate in this study, please download each of the forms listed below, and return to us in one of the following ways:1) By Mail:
St. Vincent's Catholic Medical Center
Dept. of Cardiovascular Research, Spellman 9th flr.
170 West 12th St.
NY, NY 10011
2) By Fax:
(212) 604-2259
3) By E-mail (you must have a scanner for this)
Questions
and comments may also be addressed to any of the contact methods listed
above.
Forms
